Flares in Axial Spondyloarthritis - Treating with Effective Resources (FASTER) feasibility study.
People with Axial Spondyloarthritis (axSpA) frequently experience increases in symptoms (flares) related to pain, stiffness, and fatigue. These flares can be caused by different factors and therefore treatment might require different approaches e.g. physiotherapy for increases in physical restriction, changes in medication to reduce inflammation.
However, as Rheumatology departments are now requesting that patients arrange appointments when they feel they need one, rather than coming in for regular check-ups, we need to ensure we maintain safe, high-quality services which patients feel empowered to access. This can be difficult to achieve, as some people are not always sure when their symptoms require a Rheumatology visit.
A potential way to ensure the right care is accessed at the right time is through remote monitoring. Patients can complete electronic online clinical tools which measure certain aspects of their health on a regular basis and if any changes are identified, then the patient can be automatically prompted to seek help, or the Rheumatology department can reach out.
What question is the study asking?
Can we identify when a person is having an axSpA flare, and the aspect of their health which is being impacted, based on the answers they give to a series of regular online questionnaires?
How will the study work?
People with axSpA will be recruited by their Rheumatology department or through the National Axial Spondyloarthritis Society (NASS). Those who consent to take part will receive regular emails for the next year asking them to complete questionnaires every month. People will also be able to complete these when they believe they're having a flare.
What would be my role?
As a FASTER study PPIE member we would ask you to attend approximately four online meetings over the course of 18 months. The likely input we'd request will include:
- providing us feedback and guidance on our study plan and associated documentation
- help testing out our new online questionnaires and provide feedback
- ask your opinion on potential participant interview questions
- getting your thoughts on how best to provide results to the wider community
How do I get involved?
If you would like to be involved in the FASTER study please email ppie-r@mpft.nhs.uk, or contact telephone 07970 725 380. If you have any further questions please contact Dr James Prior by email: j.a.prior@keele.ac.uk.
How will I be supported?
You will be supported by the MPFT Patient and Public Involvement and Engagement staff, who will attend meetings with you and can liaise with the research team on your behalf. Your time will be reimbursed and travel expenses will also be provided.